On a personal note, today marks 21 years since losing my mom to CJD.
At the time, I sounded the alarm about prion disese and the NPDPSC in Yahoo groups. Quickly got my hand slapped by them.
The Internet has changed a lot in 21 years. I cannot be censored now on Nostr, and you can imagine I did NOT go quietly from the discussion at the time.
I have, to this day, always done my part in trying to "solve" or "cure" the most insidous disease on this planet and I always will.
If I am ever "quiet" or even "silent" about prion disease in the US, it is NOT due to lack of activity or concern.
At some point, I chose to live my life. Normal. Boring. Drama-free.
If you would like to support the work that I have supported since 2012, here is the information.
The work of @MedSchlr by @Emma and @liminal 🦠 is vital for our future.
*I will NOT be responding to ANY conspiracy theory comments. Thank you.*
https://memory.ucsf.edu/people/michael-geschwind
At the time, I sounded the alarm about prion disese and the NPDPSC in Yahoo groups. Quickly got my hand slapped by them.
The Internet has changed a lot in 21 years. I cannot be censored now on Nostr, and you can imagine I did NOT go quietly from the discussion at the time.
I have, to this day, always done my part in trying to "solve" or "cure" the most insidous disease on this planet and I always will.
If I am ever "quiet" or even "silent" about prion disease in the US, it is NOT due to lack of activity or concern.
At some point, I chose to live my life. Normal. Boring. Drama-free.
If you would like to support the work that I have supported since 2012, here is the information.
The work of @MedSchlr by @Emma and @liminal 🦠 is vital for our future.
*I will NOT be responding to ANY conspiracy theory comments. Thank you.*
https://memory.ucsf.edu/people/michael-geschwind
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