For years I was not taken seriously or outright disbelieved about my chronic pain issues. Even when I was in the Emergency Department, I came to know the futility of expecting a different outcome.
Tw...
@nprofile1q... We truly understand this. Frequent flyers with my son. We tell all medical people over and over and over, even through shift changes what to watch for. Average time in ER is 9 hours. Our rule is never leave him alone in ER ever. Ever. And then when he’s on a ward we go through same speeches each shift and each new medical person. And then we leave to get some sleep and hope hope hope these people listened and really paid attention.
A lot of pain will cause a seizure. Downplay it and there may be a traumatic seizure. I was woken 1:30 am by a doctor asking how we usually treat his seizures. By this time he was 1/2 hour full seizure. At 35 minutes status he went straight to ICU.
WTF did a DOCTOR mean asking US this when the nursing staff supposedly had this information directly from us. And I leave a document IN HIS ROOM on protocol. 3 week stay, twice in ICU. Because someone or someone’s didn’t take us seriously or listen to my son. Or, even watch over him. I’m soooo over it.
A lot of pain will cause a seizure. Downplay it and there may be a traumatic seizure. I was woken 1:30 am by a doctor asking how we usually treat his seizures. By this time he was 1/2 hour full seizure. At 35 minutes status he went straight to ICU.
WTF did a DOCTOR mean asking US this when the nursing staff supposedly had this information directly from us. And I leave a document IN HIS ROOM on protocol. 3 week stay, twice in ICU. Because someone or someone’s didn’t take us seriously or listen to my son. Or, even watch over him. I’m soooo over it.
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